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For thirty-two years Ken Steele lived with the devastating symptoms of schizophrenia, tortured by inner voices commanding him to kill himself, ravaged by the delusions of paranoia, barely surviving on the ragged edges of society. In this inspiring story, Steele tells the story of his hard-won recovery from schizophrenia and how activism and advocacy helped him regain his sanity and go on to give hope and support to so many others like him.
- Sales Rank: #407632 in eBooks
- Published on: 2008-08-05
- Released on: 2008-08-05
- Format: Kindle eBook
From Publishers Weekly
From the age of 14, mental health advocate Steele battled the ruthless barrage of voices and hallucinations of schizophrenia. His arduous 32-year struggle is chronicled in this memoir, written with journalist Berman (What Am I Doing in a Step-Family?). Despite his parents' initial reluctance to admit the seriousness of his disorder, Steele, who died last year of heart failure, understood early on that his condition was pushing him ever closer to suicide. Only reading and writing provided him a haven, offering him flights of imagination that temporarily quieted the voices. Instead of seeking proper treatment, his family allowed him to drop out of school and stay idle at home, where he only got sicker. He tried to move to New York from Connecticut; to attend theater school, only to end up in a mental ward, the first of several hospitalizations. Steele then descended into alcoholism, homelessness and exploitation by male hustlers. After AA meetings, drugs, shock treatments and repeated hospitalizations, he eventually triumphed over the illness to fashion a new life. Many readers will be emotionally drained by the time he becomes a nationally recognized spokesman for the rights of the mentally ill and the publisher of New York City Voices, a publication heralding that cause. Steele's sobering yet resonant and inspiring narrative refuses to sugarcoat the tremendous force of this disorder and its stubborn resistance to recovery. (May) Forecast: Advertising in the New York Times, San Francisco Chronicle and Los Angeles Times should help this book find its audienceschizophrenics and their families, policy makers, mental health professionals and anyone who cares about the mentally ill.
Copyright 2001 Cahners Business Information, Inc.
From Library Journal
In 1995, Steele, a schizophrenic, began taking a new antipsychotic medication. Suddenly, the voices that had tormented him for 32 years were silenced. In this posthumous memoir (Steele died of heart failure last year), he describes the paranoia and delusions that afflicted him as he wandered across the United States. He also chronicles his post-medication triumphs: after reading a politician's letter about how the mentally ill don't vote, Steele went on to become a leading activist for the mentally ill, organizing a voter registration campaign in halfway houses and treatment centers. As publisher of New York City Voices: A Consumer Journal for Mental Health Advocacy, Steele encouraged those with mental illnesses to share their stories, and some of these personal accounts are included in the book's final section. Through Steele's eyes, readers see the changes in psychiatric treatment from incarceration in mental asylums to integration into the community made possible by a support network of halfway houses, club houses, clinics, and advocacy programs. In an afterword, Steele discusses recent changes in mental health policy and treatment and outlines future needs if the mentally ill are to become fully functioning members of society. This remarkable, well-written, and inspiring memoir is recommended for all collections. Lucille Boone, San Jose P.L., CA
Copyright 2001 Reed Business Information, Inc.
From Booklist
Steele died at 51, just after completing this highly personal but clear-headed account of his life as a schizophrenic. His parents' denial of his illness, which struck suddenly when he was 14, hampered them and him in seeking help and in understanding the dangers his condition might entail, and thus his experience of his illness was punctuated by several suicide attempts and violent attacks. There were also a few bright spots--the occasional knowledgeable, sympathetic doctor or positive and educational hospital program--amid the despair and hopelessness that usually surrounded him. During the 32 years that interior voices overwhelmed his thoughts and actions, Steele moved back and forth across the country and in and out of hospitals and worked at odd jobs, including an unfortunate stint of prostitution. His account of the day the voices stopped will surely remain with everyone who reads it, and the whole book should inform and affect other victims of severe mental illness and their families. William Beatty
Copyright © American Library Association. All rights reserved
Most helpful customer reviews
2 of 2 people found the following review helpful.
a good and compassionate therapist
By E.Hess.
This is a gripping book. He lived a very tough life and it is a miracle how he survived it. All the kudos go to his resilience, perseverance, and the grace of God that sustained him. But his endorsement of antipsychotics was naive and uneducated. He says that he called the drug company and asked them now that the voices were gone whether they thought their drugs did it. What do you expect? Of course they will say "yes"! Today, science has proven otherwise! In my view, it was all other factors, a good and compassionate therapist, a good job that gave him a sense of purpose, and a community of supportive individuals, that helped him to overcome his voices. A great book to read if you want to know how the mind of a person with "schizophrenia" works!
1 of 1 people found the following review helpful.
Frightening and Inspiring
By Tweak
This book is frightening and inspiring. Ken Steele was about as mentally ill as one can be. In and out of hospitals for decades, fighting every day against his voices, he continued to look for answers and eventually found them late in his life. His story is very real and often very sad. One of his main goals became to help others which he most definitely did in many ways.
I watched a 20/20 piece on YouTube with Ken Steele and the interviewer seemed to have no idea, no clue at all what its like to live like that. Maybe no one can really understand unless they go through it, but to read this book is to get a true portrayal of the pain, frustration and desperation of mental illness.
7 of 7 people found the following review helpful.
Best Book about Schizophrenia.........
By Jimmy Stevenson
A couple of years ago I was sitting in the office of a psychiatrist. She had just diagnosed me with schizophrenia. I said to her, what is this stuff? How can I learn more about it? It is terrible, how can I learn more about it? I just could not believe that there were others out there who could have voices in their heads like me.
She wheeled around in her big chair, turned towards this long bookshelf and grabbed a book out of it. She said to me, "Here is a book I am going to lend to you. It was written by another person who had schizophenia. You should be able to learn from it."
So I started reading the book that same day. I finished the book about 4 days later. It was a fast read. It was an incredible tool in helping me understand schizophrenia. And proving to me that I wasn't the only one with voices in my head.
What Ken Steele went through was wild. From institution to institution it was simply terrible. Beyond comprehension. It was in a way totally fascinating.... and frightening.
But a part of what Ken said in the book was mystifying. He said that when he went into a psychotic episode he could not remember, that he blacked out and forgot.
Not me. I can remember. There are loud, non-stop command voices. The voices run day and night and seem like they are being beamed down from a satelite into your head. There is continual insomnia. You go to bed at 10 pm only to finally fall asleep at 2 am, and then to awaken at 4 am. This happens night after night. There are intense paranoid believable delusions which seem so real. But they are not. The non-stop voices tell you that you have done terrible things, that you are a terrible person and that you should just end your life.
Yea, to me, this is psychosis. The book really did not talk about this. Maybe it doesn't have to. Maybe for those of us who know, maybe we can fill in the blanks. Whatever.
I was also surprised to hear that Ken lost his life shortly after this book came out. This was due to the fact that his anti-psychotic meds made him fat. I have to struggle with this phenomenon as well because the latest anti-psychotic meds make you put on weight and raise your blood sugar levels. There is always a down side.
The book is not pretty. But then again schizophrenia is not pretty. There is no Hollywood ending to our story. There just isn't.
Kudos to Ken and the lady who put this story into a book. It is extraordinarily difficult to put a schizophrenic's story down on paper because it is so difficult to regurgitate and talk about it. I know, I have tried. As you talk about a psychotic episode it pulls you down into it and you start to relive the psychotic episode. It becomes extremely frightening to do it. I have tried and can't do it even though I am an Airborne Ranger. It doesn't matter.
Captain Jimmy Stevenson, Airborne Ranger
Sufferer of Schizophrenia
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